Bleeding Disorders Logic services include, but are not limited to:
To learn more about Hemophilia or Von Willebrand disease click here:
Infusion LogsThe information that you record on your infusion log enables your physician to monitor your treatment and make adjustments as needed, and can help you determine whether certain activities increase your risk for bleeding.
The information you provide in your log should include:
To print a new infusion log, please click here.
Most private, state and federal insurance carriers now require a copy of this log to confirm that you are using your factor as ordered. Additionally, your infusion log effectively records and tracks your infusion history for your insurance coverage, if requested.
You may reproduce copies for your personal use. You should write down your information on your log each time an infusion is given, and this record should be shared with your physician, pharmacy and insurance carrier, as requested.
Resources for Persons with Bleeding Disorders Government Agencies Centers for Disease Control and Prevention Hematologic Diseases Branch 1600 Clifton Road Atlanta, GA 30333 Ph: 404.639.3311 Public Inquiries Ph: 404.639.3534 Toll-free: 800.311.343National Institute of Health National Heart, Lung, and Blood Institute For all health-related questions and requests for copies of publications, please contact a trained information specialist at the NHLBI Information Center. Include a current postal address, since many resources are available only as printed publications. NHLBI Health Information Center P.O. Box 30105 Bethesda, MD 20824-0105 Ph: 301.592 8573 TTY: 240.629.3255 Fx: 301.592.8563 The Americans with Disabilities Act Information Line Disability Rights Section, Civil Rights Division, US Department of Justice P.O. Box 66738 Washington, DC 20035-6738 Ph: 800.514.0301 TTY: 800.514.0383 www.ada.gov Private Agencies and Foundations American Association of Blood Banks www.aabb.org
American Society of Hematology1900 M Street NW, Suite 200 Washington, DC 20036 Ph: 202.776.0544 Fx: 202.776.0545 www.hematology.org Hemophilia Federation of America 102 B Westmark Blvd. Lafayette, LA 70506 Ph: 800.230.9797 Fx: 337.991.0087 www.hemophiliafed.org
National Organization of Rare Diseases (NORD) 55 Kenosia Avenue, PO Box 1968 Danbury, CT 06813-1968 Ph: 203.744.0100 Toll-free: 800.999.6673 (voice mail only) TDD: 203.797.9590 Fx: 203.798.2291 www.rarediseases.org E-mail: firstname.lastname@example.org The National Hemophilia Foundation 110 Greene Street, Suite 303 New York, NY 10012 Ph: 800.42.HANDIwww.hemophilia.org The World Federation of Hemophilia 1425 Rene Levesque Blvd., W.Montreal, QC H3G177, CanadaPh: 514.933.7944 Fx: 514.933.8616www.wfh.org
Gene Therapy Web Sites Human Genome Project Information www.ornl.gov/sci/techresources/Human_Genome/Home.shtml National Human Genome Research Institute www.genome.gov National Library of Medicine, National Institutes of Health www.nlm.nih.gov/medlineplus/genesandgenetherapy.html NIH Office of Biotechnology Activities (OBA) www4.od.nih.gov/oba/